Love For Our Family Is What Carries Us Through

Hosted by Erica Jolene, Kristyn and Kevin Newbern


[Image Description: Kevin, a smiling Caucasian male with brunette hair and beard, flexing his colorfully tattooed bicep next to his son Luke, a shirtless young Caucasian male with blonde hair, flexing his bicep and proudly displaying his heart-surgery scar that is located vertically along his sternum.]

Punk Rock, just like DAD! (That is really what this episode should have been titled!)

It was an absolute honor and joy to have been the lucky third wheel in the intimate conversation between Kristyn and Kevin. This one really hits all the feels - you have comedy, you have joy, sadness, fear, and, most importantly, you have love.

LOVE is really the most powerful theme of this episode. If there is one thing I hope you take away from this entire season, it is just that: it is LOVE that fuels us through life's most unpredictable of challenges. ...oh, and that our moms are always right, 99.9% of the time

#HeartDad #RareDisease #RareDiseaseDad #NoonanSyndrome #Dadvocate #MedicallyComplex #CHDAwareness #CHD

Kristyn is joined by her loving husband and proud father of Luke and Ozzie, Mr. Kevin Newbern. It is incredibly rare to see or hear the father’s perspective on life as a rare disease parent. Kevin shares his story, thoughts, and feelings on life as a Heart Dad. As they explain throughout this episode, becoming a parent to a child with a life-threatening health condition transforms you, and that transformation isn’t always easy. It is full of fear, sadness, discomfort, and uncertainty - all of which are rooted in the profound love for your child. It's that same love that helps us to persevere.

If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. HERE you will find a link that will allow you to record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 30th.

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