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A storied dedication to those special people who exist beyond the microphone.
THE BEST OF FRIENDS
GROWING TOGETHER THROUGH THICK AND THIN Hosted by Erica Jolene and Kristyn Newbern, with friends, Lauren Smith and Alice Dunlap
Physical Therapy for children with disabilities.
CONVERSATIONS WE AVOID HAVING
Hard, but necessary conversations that we should all be having but often avoid for fear that people would not understand.
BUILDING A FAMILY THROUGH IVF AND PGT
WITH GENETICS COUNSELOR, MARISA ANDREWS Hosted by Erica Jolene and Kristyn Newbern | Transcription HERE Social Media Updates Facebook &...
Two moms of children with a rare disease find comfort in the permission to get uncomfortable.
Surgery day through the memories of a mother and a patient.
Life within and beyond the hospital walls with Pediatric Cardiologist, Dr. Chetana Reddy at Cardinal Glennon Children's Hospital.
The power of a person's story, the need for more disability representation in our society, and how privilege influences all of these themes.
Katie is an international family and child advocate for those impacted by Noonan Syndrome.
LUKE & OZZIE
Once a medical mom, always a medical mom. Raising two brothers with diverse abilities and differing personalities.
The responsibilities of raising a child with a rare diagnosis and disabilities: trust, letting go, and helping them to be who they are.
KRISTYN & LUKE
Kristyn explains Luke’s complicated diagnoses and details her transformation into life as a complex medical mom.
GET TO KNOW THE NEWBERN FAMILY
Meet Kristyn and Luke - lovers of space, music, Kevin, Ozzie, and a very special dog named Charlotte.
SEASON TWO PREVIEW
Preview of what is to come in Season Two with the special guest co-host, Kristyn Newbern.
Part Five - Telling the Atypical Truth: Disability Community-Building Through Podcasting
Explanation of the miracle question, participant contribution, the challenges of learning disabilities, and how the podcast transformed me.
Part Four - Telling the Atypical Truth: Disability Community-Building Through Podcasting
The benefits of combining a caregiver's expertise on their child's rare condition with current research and medicine.
Part Three - Telling the Atypical Truth: Disability Community-Building Through Podcasting
Using current research, Erica shares validating data, confirming that she was not alone with her feelings of social isolation.
Part Two - Telling the Atypical Truth: Disability Community-Building Trough Podcasting
A traumatic birth story garnered unexpected support. Current research examines contradicting themes that impact caregivers to children with
Part One - Telling the Atypical Truth: Disability Community-Building Trough Podcasting
Sharing thesis research which examined the potential for the podcast, Atypical Truth, to be a resource for disability community-building.
Sister & Nurse
Nurse Kaylee shares her experience as a proud big sister and how her natural tendency to care for her siblings led her to become a nurse.
Afterthoughts - Social Inequalities, Ableism, & How it Impacts Everyone
A personal examination of how ableism, social inequalities, and resource disparities impact people with disabilities.
Dr. Dad, Neurologist
Pediatric Neurologist, Dr. Sean Goretzke, shares his approach in navigating difficult treatment options and quality of life conversations.
A Mom Who Fought With Law & Won
Shana Metsch details her experiences battling Medicaid for a variety of items that her daughter needs like nursing, equipment, and supplies.
Amanda Kaufman, MSW, a caseworker with DSCC, shares about her mission to help assist families of children with special health care needs.
Afterthoughts - Thoughts We Keep To Ourselves
Two medical moms discuss topics that often feel taboo with others, difficult decisions, unspoken thoughts, and unusual thoughts of comfort.
Love Needs No Words
Jenny Park shares about what her daughter's rare condition has taught her, both as a mother and an educator.
Afterthoughts - Home Health Nursing
Two medical moms swap stories about their vulnerable experiences with navigating home health nursing for our medically complex children.
Home Health Nursing
Amelia Mohr and Erica discuss navigating the decision of home health nursing into your home, from the perspective of the nurse and family.
Afterthoughts - Rebuilding Trust While Navigating Our "New Norm"
Erica details her experience of having to rebuild her trust with medical professionals after the events surrounding Margot's birth.
Complex Medical Care
Dr. Tanios, Pediatric Physician, shares with us about her Complex Medical Care career and her hopes for the future of medicine.
Erica shares about life growing up with disabilities and a tracheostomy. She details the plans for the future of this podcast.
Erica Jolene shares about why she created this podcast to amplify the stories of those in disability community.
Atypical Truth Podcast
Episode Transcription Provided