CONVERSATIONS WE AVOID HAVINGHard, but necessary conversations that we should all be having but often avoid for fear that people would not understand.
BUILDING A FAMILY THROUGH IVF AND PGTWITH GENETICS COUNSELOR, MARISA ANDREWS Hosted by Erica Jolene and Kristyn Newbern | Transcription HERE Social Media Updates Facebook &...
RARE FRIENDSTwo moms of children with a rare disease find comfort in the permission to get uncomfortable.
PEDIATRIC CARDIOLOGYLife within and beyond the hospital walls with Pediatric Cardiologist, Dr. Chetana Reddy at Cardinal Glennon Children's Hospital.
REFLECTIONThe power of a person's story, the need for more disability representation in our society, and how privilege influences all of these themes.
FAMILY ADVOCATEKatie is an international family and child advocate for those impacted by Noonan Syndrome.
LUKE & OZZIEOnce a medical mom, always a medical mom. Raising two brothers with diverse abilities and differing personalities.
RAISING LUKEThe responsibilities of raising a child with a rare diagnosis and disabilities: trust, letting go, and helping them to be who they are.
KRISTYN & LUKEKristyn explains Luke’s complicated diagnoses and details her transformation into life as a complex medical mom.
GET TO KNOW THE NEWBERN FAMILYMeet Kristyn and Luke - lovers of space, music, Kevin, Ozzie, and a very special dog named Charlotte.
SEASON TWO PREVIEWPreview of what is to come in Season Two with the special guest co-host, Kristyn Newbern.
Part Five - Telling the Atypical Truth: Disability Community-Building Through PodcastingExplanation of the miracle question, participant contribution, the challenges of learning disabilities, and how the podcast transformed me.
Part Four - Telling the Atypical Truth: Disability Community-Building Through PodcastingThe benefits of combining a caregiver's expertise on their child's rare condition with current research and medicine.
Part Three - Telling the Atypical Truth: Disability Community-Building Through PodcastingUsing current research, Erica shares validating data, confirming that she was not alone with her feelings of social isolation.
Part Two - Telling the Atypical Truth: Disability Community-Building Trough PodcastingA traumatic birth story garnered unexpected support. Current research examines contradicting themes that impact caregivers to children with
Part One - Telling the Atypical Truth: Disability Community-Building Trough PodcastingSharing thesis research which examined the potential for the podcast, Atypical Truth, to be a resource for disability community-building.
Sister & NurseNurse Kaylee shares her experience as a proud big sister and how her natural tendency to care for her siblings led her to become a nurse.
Afterthoughts - Social Inequalities, Ableism, & How it Impacts EveryoneA personal examination of how ableism, social inequalities, and resource disparities impact people with disabilities.
Dr. Dad, NeurologistPediatric Neurologist, Dr. Sean Goretzke, shares his approach in navigating difficult treatment options and quality of life conversations.
A Mom Who Fought With Law & WonShana Metsch details her experiences battling Medicaid for a variety of items that her daughter needs like nursing, equipment, and supplies.
Resource HunterAmanda Kaufman, MSW, a caseworker with DSCC, shares about her mission to help assist families of children with special health care needs.
Afterthoughts - Thoughts We Keep To OurselvesTwo medical moms discuss topics that often feel taboo with others, difficult decisions, unspoken thoughts, and unusual thoughts of comfort.
Love Needs No WordsJenny Park shares about what her daughter's rare condition has taught her, both as a mother and an educator.
Afterthoughts - Home Health NursingTwo medical moms swap stories about their vulnerable experiences with navigating home health nursing for our medically complex children.
Home Health NursingAmelia Mohr and Erica discuss navigating the decision of home health nursing into your home, from the perspective of the nurse and family.
Afterthoughts - Rebuilding Trust While Navigating Our "New Norm"Erica details her experience of having to rebuild her trust with medical professionals after the events surrounding Margot's birth.
Complex Medical CareDr. Tanios, Pediatric Physician, shares with us about her Complex Medical Care career and her hopes for the future of medicine.
Atypical IntroductionErica shares about life growing up with disabilities and a tracheostomy. She details the plans for the future of this podcast.
Atypical TrailerErica Jolene shares about why she created this podcast to amplify the stories of those in disability community.