Hard, but necessary conversations that we should all be having but often avoid for fear that people would not understand.

WITH GENETICS COUNSELOR, MARISA ANDREWS Hosted by Erica Jolene and Kristyn Newbern | Transcription HERE Social Media Updates Facebook &...

Two moms of children with a rare disease find comfort in the permission to get uncomfortable.

Surgery day through the memories of a mother and a patient.

Life within and beyond the hospital walls with Pediatric Cardiologist, Dr. Chetana Reddy at Cardinal Glennon Children's Hospital.

The power of a person's story, the need for more disability representation in our society, and how privilege influences all of these themes.

Katie is an international family and child advocate for those impacted by Noonan Syndrome.

Once a medical mom, always a medical mom. Raising two brothers with diverse abilities and differing personalities.

The responsibilities of raising a child with a rare diagnosis and disabilities: trust, letting go, and helping them to be who they are.

Kristyn explains Luke’s complicated diagnoses and details her transformation into life as a complex medical mom.

Meet Kristyn and Luke - lovers of space, music, Kevin, Ozzie, and a very special dog named Charlotte.

Preview of what is to come in Season Two with the special guest co-host, Kristyn Newbern.

Explanation of the miracle question, participant contribution, the challenges of learning disabilities, and how the podcast transformed me.

The benefits of combining a caregiver's expertise on their child's rare condition with current research and medicine.

Using current research, Erica shares validating data, confirming that she was not alone with her feelings of social isolation.

A traumatic birth story garnered unexpected support. Current research examines contradicting themes that impact caregivers to children with

Sharing thesis research which examined the potential for the podcast, Atypical Truth, to be a resource for disability community-building.

Nurse Kaylee shares her experience as a proud big sister and how her natural tendency to care for her siblings led her to become a nurse.

A personal examination of how ableism, social inequalities, and resource disparities impact people with disabilities.

Pediatric Neurologist, Dr. Sean Goretzke, shares his approach in navigating difficult treatment options and quality of life conversations.

Shana Metsch details her experiences battling Medicaid for a variety of items that her daughter needs like nursing, equipment, and supplies.

Amanda Kaufman, MSW, a caseworker with DSCC, shares about her mission to help assist families of children with special health care needs.

Two medical moms discuss topics that often feel taboo with others, difficult decisions, unspoken thoughts, and unusual thoughts of comfort.

Jenny Park shares about what her daughter's rare condition has taught her, both as a mother and an educator.

Two medical moms swap stories about their vulnerable experiences with navigating home health nursing for our medically complex children.

Amelia Mohr and Erica discuss navigating the decision of home health nursing into your home, from the perspective of the nurse and family.

Erica details her experience of having to rebuild her trust with medical professionals after the events surrounding Margot's birth.

Dr. Tanios, Pediatric Physician, shares with us about her Complex Medical Care career and her hopes for the future of medicine.

Erica shares about life growing up with disabilities and a tracheostomy. She details the plans for the future of this podcast.

Erica Jolene shares about why she created this podcast to amplify the stories of those in disability community.